Amyloidosis is a rare disease that often goes undiagnosed until it is too late. We are raising funds for diagnosis and treatment of this killer disease. I was diagnosed, ten years ago, at the National Amyloidosis Centre (NAC) which is part of the Royal Free Hospital in London. This is the only specialist centre for amyloidosis in the UK. I have an annual check-up at the NAC. In 2010 75 % of people died within three months of diagnosis. 


I have received all my treatment at the Christie Hospital in Manchester. Under advice from the NAC I required specialist drugs and the Christie was my nearest hospital that could give me them.  The collaboration between the Christie and the NAC has been brilliant.  


The Living Stuff

I've got amyloidosis - Kathy has to live with it.  We were lucky, I was diagnosed fairly quickly.  Life has changed, in many ways for the better.  I want to share experiences, good and bad, to help others get the most out of what is a challenging situation.
Get started with living

The Project Management Stuff

I am not fit enough for sponsored runs or climbing mountains to raise funds. However people have been telling me for 25 years that I am brilliant, if a bit unusual, business and management coach. So I intend to engage you with my stories and experiences. In return please feel free to have a go with the donate button.




Richard Preston MA MSc CEng FIET Hon FAPM